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April 19, 2019


OK - deep breaths - my disease is definitely active again.  Evidently a tumor at T4 has doubled in size (I understand the method behind interval MRI scans).  Still too early to tell if the cervical spine tumors responded to the radiation this past fall (fingers crossed on that one).  I've decided to try a 48-week chemo combo of Temodar and Lapatinib.  The toxicity and efficacy are "to be determined."  Sometimes I feel sunk, especially when all my brain and spine deficits rear their ugly heads.


Onward! Thanks for everyone's love and support!  I'd never make it without my incredible network - you know who you are!


Definitely Save the Date:  Race for Hope nearly here -

May 5 2019.  Here's the link to my awesome team: