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May 13, 2019


My ependymoma disease is relentless.  Just had my 19th anniversary since my first brain surgery.  But... it's back!  Literally in my spine in multiple spots even after proton beam radiation therapy.  Starting a chemotherapy combination of lapatinib (originally for metastatic breast cancer) and Temodar.  Not sure how feasible this long-term treatment will be from a delivery and side effects perspective.  Fingers and toes crossed!


Onward! Thanks for everyone's love and support!  I'd never make it without my incredible network - you know who you are!


Thanks to everyone who supported our cause to find a cure for brain tumors.  The Race for Hope was a (soggy) success!  Will post our photo album soon...