February 26, 2020


"Where does the time go?"  After a month off in October to give my skin a break from the chemo rash, I'm in Month 9 of the daily lapatinib / Temodar protocol.  Honestly I don't know how I will cope with all the deficits from the treatments over the years, not to mention what the tumors could be doing to make me feel so impaired.  Things seem to be very difficult - ugh!   Pain in my trach area is off the charts - same with my lower back.  Dr Phillips reminded me that I'm ingesting poison and it's not surprising that I'm feeling so beleaguered.  Sigh...


MRI results - "Good/Mixed" - Awaiting a group consensus.                                                                            Seeing Dr Gilbert on March 3 at NIH.